Archive for children

Going Home

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Jen drove slowly down the old dirt drive. “There aren’t many dirt roads or long driveways left,” she thought. She hadn’t seen her great aunt Sarah in many years. All sorts of excuses rushed through her brain as she got closer to the lovely old farm house at the end of the driveway. “I’ve lived too far away, I’ve been so busy, I haven’t seen her since I was a child,”she thought, then guiltily threw each excuse aside.

She had not taken the time-period. Now, she was 27 years old, a high school history teacher, engaged to be married and she could surely have thought of more valid excuses than those. But something had tugged at her heart. She had come to Alabama to tour a local schools system for a study she was conducting. Remembering that Aunt Sarah lived in this county, she looked her up in the phone book. Surprisingly, she was still listed.

She got out her I-phone and turned on the app that showed her a map to the little town of Rosewood and soon found Cornfield Lane right off the main road. “What would she say?” she wondered as she pulled up the two story house with a wrap around porch. Would Aunt Sarah remember her, welcome her, or would she be treated with disdain?

Jen remembered that Aunt Sarah, her mother’s aunt, had been married, had 3 children and then her husband had died at a fairly early age. She didn’t think she had remarried, because her name was still the same in the phone book. It seems the children would be about her mother’s age, probably with grandchildren of their own.

With her heart beating quickly inside her chest, she parked her Maroon Chevy Van near the house and walked towards the door. It was nearly Halloween, and even in Alabama, there was a nip of autumn in the air. Jen, pulled her sweater around her as she walked up the old brick sidewalk. Before she started up the steps, an elderly lady walked out onto the porch. The screen door creaked as it closed behind her.

“Why, Jenny!” The lady exclaimed. “Jenny Markham! Is that you?”

“It’s me, alright, Aunt Sarah.” Jen said with a blush. “I have no excuse for not having seen you in so long. It makes those Christmas cards seem awfully pitiful.”

“Well, don’t you think a thing about it,” Aunt Sarah said with a smile as she opened the door and motioned for Jen to come in. Jen obliged, remembering the high ceilings and the slightly old scent of the wooden house. She looked around and smiled. It was as if she had been here only a short time ago.

“Come on in here and let me make us some tea,” Aunt Sarah smiled as she lead Jen to the room behind the living room. Sarah stood and looked around at her Great Aunt’s kitchen. The same long table and chairs sat upon the worn tiles, the curtains were new, but of similar pattern, an autumn harvest with ruffled bottoms around the windows which hung over the sink and the one on the slightly opened back door. It brought back memories of her mother and rest of their big family coming here for watermelon on the Fourth of July when she was young.

“It sure is good to see you, Jenny!” Aunt Sarah smiled. “What on earth brought you way out here in backwoods Alabama?”

Jenny told her about her research project, career and upcoming marriage, inviting her long-lost cousins and families to come. Aunt Sarah sat and sipped tea with her for maybe half an hour before she invited her to come through the house and see the walls and dark walnut dressers filled with pictures of her children, grandchildren and even their kids. Again, Jen’s heart beat rapidly inside her as she took in the years and memories that she had missed out on when her father had taken a new job in East Texas.

She wondered what her life would have been like if they had stayed here. Would her and her brother’s kids been friends with Aunt Sarah’s children, would they have ridden the same bus, lived on the same road, had watermelon on that worn front porch on the fourth of July? Would she already be married, maybe to someone she knew as a child.?

Thoughts swirled through her head as the “what if’s” rushed by. What was the name of the high school here? What college would she have gone to? Would she have been a teacher, like she was now? It was at that moment Jen decided not to tell her Aunt Sarah her secret. She would save it until after the wedding, it would seem better then.

Inside her, Jen felt the movement of her baby, a girl, she had learned just yesterday. She wondered how Aunt Sarah would feel about her being pregnant before her marriage and then grabbed her Aunt’s wrinkled hand. Of course, she would love this baby, just like all the other children that decorated her dressers and walls. Surely, out of all of them, there had been children conceived before their parents married. Perhaps their parents had never married at all.

After a long visit, Jen walked back to her car with Aunt Sarah and her collie, Barney, beside her. She promised her Aunt that she would never let their families loose touch again, and she meant it. In Aunt Sarah’s younger days, having a baby before marriage would have brought many cross looks and perhaps even a few rejections. But this, thank goodness as a different time.

Jen vowed to herself that she would write her aunt a letter and tell her more about her soon-to-be husband and the baby she was carrying as soon as she got back to Texas. There was one more thing she would ask of the Aunt she had just come know again. She would ask her to allow her the honor of naming her new baby, Sarah.

Jen drove slowly down the old dirt drive. “There aren’t many dirt roads or long driveways left,” she thought. She hadn’t seen her great aunt Sarah in many years. All sorts of excuses rushed through her brain as she got closer to the lovely old farm house at the end of the driveway. “I’ve lived too far away, I’ve been so busy, I haven’t seen her since I was a child,”she thought, then guiltily threw each excuse aside.

She had not taken the time-period. Now, she was 27 years old, a high school history teacher, engaged to be married and she could surely have thought of more valid excuses than those. But something had tugged at her heart. She had come to Alabama to tour a local schools system for a study she was conducting. Remembering that Aunt Sarah lived in this county, she looked her up in the phone book. Surprisingly, she was still listed.

She got out her I-phone and turned on the app that showed her a map to the little town of Rosewood and soon found Cornfield Lane right off the main road. “What would she say?” she wondered as she pulled up the two story house with a wrap around porch. Would Aunt Sarah remember her, welcome her, or would she be treated with disdain?

Jen remembered that Aunt Sarah, her mother’s aunt, had been married, had 3 children and then her husband had died at a fairly early age. She didn’t think she had remarried, because her name was still the same in the phone book. It seems the children would be about her mother’s age, probably with grandchildren of their own.

With her heart beating quickly inside her chest, she parked her Maroon Chevy Van near the house and walked towards the door. It was nearly Halloween, and even in Alabama, there was a nip of autumn in the air. Jen, pulled her sweater around her as she walked up the old brick sidewalk. Before she started up the steps, an elderly lady walked out onto the porch. The screen door creaked as it closed behind her.

“Why, Jenny!” The lady exclaimed. “Jenny Markham! Is that you?”

“It’s me, alright, Aunt Sarah.” Jen said with a blush. “I have no excuse for not having seen you in so long. It makes those Christmas cards seem awfully pitiful.”

“Well, don’t you think a thing about it,” Aunt Sarah said with a smile as she opened the door and motioned for Jen to come in. Jen obliged, remembering the high ceilings and the slightly old scent of the wooden house. She looked around and smiled. It was as if she had been here only a short time ago.

“Come on in here and let me make us some tea,” Aunt Sarah smiled as she lead Jen to the room behind the living room. Sarah stood and looked around at her Great Aunt’s kitchen. The same long table and chairs sat upon the worn tiles, the curtains were new, but of similar pattern, an autumn harvest with ruffled bottoms around the windows which hung over the sink and the one on the slightly opened back door. It brought back memories of her mother and rest of their big family coming here for watermelon on the Fourth of July when she was young.

“It sure is good to see you, Jenny!” Aunt Sarah smiled. “What on earth brought you way out here in backwoods Alabama?”

Jenny told her about her research project, career and upcoming marriage, inviting her long-lost cousins and families to come. Aunt Sarah sat and sipped tea with her for maybe half an hour before she invited her to come through the house and see the walls and dark walnut dressers filled with pictures of her children, grandchildren and even their kids. Again, Jen’s heart beat rapidly inside her as she took in the years and memories that she had missed out on when her father had taken a new job in East Texas.

She wondered what her life would have been like if they had stayed here. Would her and her brother’s kids been friends with Aunt Sarah’s children, would they have ridden the same bus, lived on the same road, had watermelon on that worn front porch on the fourth of July? Would she already be married, maybe to someone she knew as a child.?

Thoughts swirled through her head as the “what if’s” rushed by. What was the name of the high school here? What college would she have gone to? Would she have been a teacher, like she was now? It was at that moment Jen decided not to tell her Aunt Sarah her secret. She would save it until after the wedding, it would seem better then.

Inside her, Jen felt the movement of her baby, a girl, she had learned just yesterday. She wondered how Aunt Sarah would feel about her being pregnant before her marriage and then grabbed her Aunt’s wrinkled hand. Of course, she would love this baby, just like all the other children that decorated her dressers and walls. Surely, out of all of them, there had been children conceived before their parents married. Perhaps their parents had never married at all.

After a long visit, Jen walked back to her car with Aunt Sarah and her collie, Barney, beside her. She promised her Aunt that she would never let their families loose touch again, and she meant it. In Aunt Sarah’s younger days, having a baby before marriage would have brought many cross looks and perhaps even a few rejections. But this, thank goodness as a different time.

Jen vowed to herself that she would write her aunt a letter and tell her more about her soon-to-be husband and the baby she was carrying as soon as she got back to Texas. There was one more thing she would ask of the Aunt she had just come know again. She would ask her to allow her the honor of naming her new baby, Sarah.DSCN1026

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The Effects and Lessons of Loss-An Anology of Death

 

 

For many years of my young life, I escaped the emotional and physical costs of the death of a loved one who was a part of your daily life. In the past 14 years, it seems to have been nearly continuous, from aunts and uncles, cousins and friend, grandparents and parents to my precious 15 year old son.

I have learned that the deaths of different close friends and family affect us in entirely different ways. To see an older relative who has lived a long life and is now suffering gives us a sense of relief, that they are no longer suffering and are in, what we have been taught and hope, is “a better place. To Christians, and some other religions, that means Heaven.

When my best friend died at 48 after a 15 year battle with cancer, I could not help but feel cheated, for her, for her children and grandchildren, and later, as I faced deaths that were “closer to home”, for myself. I did not have the person I needed to talk to cry with, hug, and find comfort in her compassion.

I had several cousins and neighbors die in their middle-age, usually from cancer. I found myself looking at their lives, the happiness they had with their mates, and children, the love and attention their grandchildren would miss. I felt that they were cheated, they did not smoke, abuse their health or do dangerous things. It was a different grief process than I felt when my elderly relatives died.

I am an only child. I have lost both of my parents within the past 3 ½ years. It has been so difficult to walk into their house, the accept the not-so-good memories and embrace the wonderful support they always gave me, that I have often had to simply put their loss “in a box”, only to be opened at certain times, like birthdays, holidays or even the day they died. I spend a lot of time with my parents, seeing them most every day. When they were sick, I helped care for them, when they were sad, or scared, I listened. I helped them with their financial issues, memorial wishes, and settling estates. I would say it was the hardest thing I have ever done, but it wasn’t.

I lost my beloved son eight years ago at the age of 15. It was very sudden, a regular day, filled with normal activities for a teen-school, buss rides, ball games. On that day, I took him to a ball game and didn’t brink him home. I have written about this many times in my blog, and would love for you to look up the articles and read them and what actions I have taken since, but that is not what this article is about.

There is nothing as painful as loosing a child. There isn’t even a word for a parent who has lost a child. If you loose your parents, you are an orphan, if you loose a mate, you are a widow or widower. What are you when you loose your child? So much of what you are, what you lived for, looked forward to is gone, it is simply indescribable.

In my case, I not only lost my child, I lost my health. Within a few months, I was developing symptoms of Cushings Syndrome, a pituitary disease that has many scopes, causes and outcomes. My doctor kept insisting that what I was suffering from was “just stress”, even though I insisted that it was more than that. First let me point out that stress is not a “Just”. It destroys your health, your ability to function, to deal with work or your family. Never accept this excuse, no matter what you are suffering from.

It wasn’t until I had heart failure 8 months after my son’s sudden death, that a heart doctor started really examining me. He immediately wrote my doctor and told him that I had the typical symptoms of Cushings Disease (some types are called “Syndrome”. Evidently, I wasn’t important enough for my doctor to even read the report because 6 months later, when I went to the Cardiolgist, he was astounded that I had received no help and sent me to the Endocrinologist then next day. Again, I will ask that you read my other articles on my son’s death and my illness and return to the topic of grief and the different ways we, as humans respnd to it.

Men, women and children respond to grief in various ways. Men have a difficult time showing outward grief, having been taught during their whole lives that emotions are a sign of weakness. Therefore, they often take it out on others, especially those that they love them most. It is horrible for a woman to be fighting for her life, and not have the person who is supposed to always be there for her, him being emotional abusive, and often reverting to child-like things to get his mind off of his unfathomable sorrow.

Children under about the age of 12 often have a delayed reaction to grief. When they begin to think in a more adult-like manner, the grief that may have happened several years ago suddenly creeps in. The child may not be able to sleep, have irrational fears for their own safety or for the safety of those they love. They may regress somewhat in their behavior, their grades in school may suffer. It is very important that a child who has lost a sibling gets the help they need, and this can vary from child to child. Do not be afraid to explore your child’s needs with his doctor, counselors, siblings, your spouse or minister. I feel like it has been very difficult for me to be the mom I always was and still meet my child’s needs. Even when I felt that I was, I have realized even years later, that I needed to give him the chance to talk to those he felt comfortable with about his feelings.

The death of someone particularly close to you is often almost impossible to overcome. The effects on my health on top of my emotional grief, unfounded self-grief, and my blaming everyone from God to my child’s friends is something I still struggle with daily. Even though I have made some progress, he physical problems caused by the Cushings Disease will be with me forever, always reminding me of why I have to deal with them.

One of the best things we can do to help someone we love who is greiving is simpy to listen. Let them be angry, blame people, feel what they feel. Just getting these things out of their system for a few minutes can be tremendously helpful. Since it is difficult to deal with those who are grieving, especially over a child or a person to whom they were particularly close, we often cut ourselves off from them just when they need us the most. It is not easy to allow a person who is in the midst of grief to express feelings that we may not agree with, but we have to be able to, and, hopefully, over time, we can help lead them back to a better place. Simply learning not to blame themselves is a big step in finding a way back to a better place.

I don’t think I will ever heal from the emotional loss of my child and some of the circumstances around it, but I KNOW I will never get over the physical scars and pain that I have to live with every day of my life. I am sure that living with me is not easy for those I love. They try, and I am very grateful that they put forth this effort.

Eventually, we will all have to deal with loss in some form. Having our family and friends around us is critical in getting back to a place where we can at least function to the best of our ability. Each person’s reaction to grief varies just as their path to healing is different. Try to stand back and see what your loved one needs and be there for them, even if it is difficult for you. You, their support team can make all the difference in the world to someone suffering from loss. Take the time to talk to them, not only right after the death of a loved one, but years later as well. Send a card on the loved ones birthday or mention then on a holiday card. Help them laugh (or even cry) over some of the memories you have of their loved one. Remind them of the joy they had when they were with them and let them know that it is alright to be angry, sad, frustrated or even overcome with emotion.

One thing that has helped me is for someone to take me to dinner, on a walk, read favorite poems, or listen to music near the “anniversary” of their loss, but perhaps not on the exact day. Sometimes, the anniversary of a death, or even the persons birthday may be simply too emotionafor them to profit from your good intentions.

Remember, our day will come, and in that sense, if we have been there for someone else, it will be easier for us to accept the help of friends and benefit from it. Love involves the risk of hurt, whether from loss, breakup, moving away or simply from a child growing up and concentrating on their own life. Stand back and see if you need to “be there” or “give them space” because each of those times will come. I have found that when I lost my son, I often lost my friends as well, not from “meanness” but simply because they didn’t know what to do or say. Do not abandon your loved one in their time of need,no matter how hard it may be. Neither should you smother them, because they are having to learn to live in a completely different way than they did before.

Whether they are able to express it or not, the fact that you care will make a huge difference as the person who has experienced loss begins this new and difficult path. Simply knowing that you are there for them may be the best “medicine” you can give.

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And Suddenly He Becomes a Man

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Today, he sits in the drivers seat as we listen for the rumble of the school bus, listen for the squeal of the brakes, and I watch him disappear into the bus as I scoot into the drivers seat.

If it were not for an error in the school drivers ed list, he would already e driving, so I am savoring these few extra moths when he has to be my chauffeur, my co-pilot.

Two or three years ago, it seems he played with Lego’s and played video games, this year his is studying computer coding and just finished an internship for the school system in this area. Where has time gone?

In three years, he has grown eight inches, and has almost caught up with his brother, who is 6’5” tall.

I miss my baby, we were so close. All of my children and I were close. The one I lost at age 15 when he collapsed while playing baseball, I dream of, eyes wide open , of who he would be, what he would be doing eight years later. I feel cheated, lied to. His death cost me more than words can describe.

I enjoy days with my daughters, chasing babies as I once chased them. They sigh and say, “I don’t know how you did it with six when two drive me crazy!” And I just smile and say, “Mom’s with lots of kids grow extra hands and endless hearts.”

The nus stop is beside my oldest son’s house, where he, his wife and three kids live. To see those little white heads running up to me and saying, “I love you, Beebee.” is a gift beyond compare.

Still, I have learned there is nothing like your own children. Grand kids as wonderful, but they are not yours. You and your own children have secret languages, know each others inner thoughts. You know how they like to be held, you can nurse them when they are fussy. You have your schedules, your speial subjects that you enjoy, things that arre privte between only you and yours.

Don’t get me wrong, grand kids are great, Not just because of the old addage that “You can send them home.” but that they are rather like a glimmer of your own child mixed with a gleam of their other parent. Sometimes you catch a familiar look or action that you remember from long ago-a smile, an impish grin, a silly giggle.

To see your last child. drive away in his own car, leave for college, get married, is so much more exciting to them that it is to the mom-left alone, feeling useless. A largely stay-at-home mom like me especially suffers when they have lost a child forever and have to watch that last living child spread his wings and fly. Your tears are filled with both relief and pride.

I was an only child. I learned about sibling rivalry from my own kids. I dreamed that my kids would grow up and be like the siblings I never had, but they didn’t. They are siblings to eachother-not to me, and I have to settle for being the mom who was once everything and is now, one who wove their being, but has found herself out of yarn.

I’m am surprised and proud of my youngest son. I was/am an old hippie, jeans and peasant shirts, leather sandals, guitars and Lynyrd Skynyrd. He dresses is suits and ties, has computer skills that make me feel illiterate, he worries that his teeth are shiny enough, that his shoes are clean enough. I wonder, sometimes, where I got him. Certainly, thank goodness, he is the opposite of his father-a Harley rider who enjoys road-side sales booths and collections of used clothing. At least my son and I think alike- finding joy in discovery, whether in nature, or in technology.

One day, it seems, a mother is looking into the eyes of a new life, never knowing what that child will become , And then, in the blink of an eye, that baby is a child, a teen, a young adult, a father or mother themselves. Life goes by much too quickly, sometimes bitter-sweet, just realizing that as they grew older, so did you.

Having to look in that dark glass of what might have been when we loose a child, is the worst pain a mother can feel, yet each moment spent with that precious child glimmers like a diamond. I don’t have another mother who is a close friend that has lost a child, neither can I can tell you how many times I would have liked to smack the well-meaning people who have , lost for words, remarked, “I know how you feel, I lost my sister, brother, friend,( fill in the blank). NO, they do not know and I pray they never will.

Next spring, watch the first pale leaves emerge from a flower, look at it each day as the green grows darker and buds start to form. Close your eyes and inhale the sweetness of the bloom, then let the flower go to seed and plant the seeds again next year. Life does not stand still, it must be protected and revered.

Read “The Prophet” by Kahlil Gibran if you want to get a beautiful picture of the phases of life. Read it to your children, sing to them, teach them poetry, and don’t be surprised when one day your grandchild repeats that poem or sing that song as he walks beside you along life’s path.

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August Haiku Set

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School Daze Haiku Set

 

 

Alarm rings out-wakens me-

That first, dreaded day of school .

Where did summer go?

 

My schedule is wrong-

Sleepy-eyed counselor visit

Schedule more sleep, please.

 

Tomatoes fall over

Pumpkins lay like huge balloons

Tears fall, goodbye summer

 

August-my birthday

All I want is more summer-

Less classes and bells

 

Yellow buses hum

I just want to go back home

Drink more cocoa with mom.

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As we Grow Old-Photo Essay

Young-Winter-Difficult Days

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IMG_0352My Dad-Late 1940’s, Winter 2013, and after his illness Summer 2014, Lesson-  Never waste time, treasure your memories, let the people you love know it-every day-Remember what they taught you, ask them to tell you the stories of thier lives, write them down, share them with your childrem, and grandchildren.  Smile as we see the similarities and understand that times and ways change over the years, Love and time are the most important gifts we can give.

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Days and Nights Alone

 

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Across the room, a picture of the two of you,

Its seems like yesterday, but its been 8 years,

in the purest hell. You- taken only four months later.

Your little brother now 6’3” and growing-

the girl who has his heart isn’t me.

I am alone in my heart-I’ve taken in my sick dad-

and the daily reminders of why I left home at 18

haunting my every quiet move, with doors down,

curtains up to accommodate walkers-hospital supplies.

Every time I think “life” can get no worse, it does.

I need you, I need your brother to be little again.

I want to teach 6 kids about bugs and butterflies

and play in the creek. I want to live, love, dream.

Tonight, if and when I close my eyes, please,

my beautiful young man, stolen for no reason,

come to me, be with me, let me remember life.

 

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Life Upside-Down–Caring for our Elders

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It seems I have helped care for elderly relatives most of my adult life. HELP being the operative word here. I would have a “shift” which I shared with my mom when we were caring for my grandparents at home. There was no Hospice/Solace. We were pretty much on our own. My grandfather had a pacemaker ( he was on his third one when he died at 91) My grandmother spent 5 years in a wheel chair, passing away at age 96. We took grandma to the toilet, one of up holding her up with her hands locked behind our neck, the other pulling down her pants and sitting her on the toilet, cleaning her afterwords etc. Grandpa was mobile, but sometimes, his heart issues would cause him to just collapse on the floor. He would “wake up” after softly sinking to the floor and we would sit him down to rest.

When my mom had a health issue that left her weak and needing help, or when she broke her hip and had a hip replacement, my father was relatively well, and again, I was the HELPER, not the primary caregiver.

This time it is different. We have had a lot of trouble getting doctors to work with my father, just as I had after suddenly loosing my teenaged son. It seems they just don’t want to deal with the patient-passing them off to some other doctor who does the same thing-”We don’t treat that>” We were often referred to a doctor whose specialty was so far from my fathers real problem, it was laughable. My father had used catheters to urine for years, but it had gotten to where he frequently couldn’t “cath” himself. He would keep trying and end up with an infection. The doctor would prescribe antibiotics after examining a urine sample and schedule a re-check in a week or ten days at which time, dad would be “clear” of infection. A week or two later, it would be the same thing all over again.

Finally, in mid-May, father, very ill and in pain finally insisted that I call his “regular” doctor and hand him a phone. When he finally got though the annoying recordings and go to talk to a person, he simply said, “I need to see the doctor NOW!”. And surprisingly they had me bring him right in. That evening, after supper, the doctor called me and told me that dad’s calcium levels were extremely elevated, and to get him to the hospital ASAP. My father was living alone at the time, so my husband and I went to try to borrow a wheelchair from my aunt, who lived next door to him. She suggested we call an ambulance, because then they would take him straight in, and we did.

MY father had chronic Lymphatic Leukemia, one working kidney and several other intestinal issues beyond the catheterizing, so it took four antibiotics to get him over what ever the “Extreme calcium rise was”. Even though various doctors talked to us, all we were really told is that they didn’t know exactly why the “rise” in his calcium levels had happened. Since they ordered “small needle biopsies” on his abdominal lymph glands, we knew that the condition had to with his chronic condition.

One doctor came and talked to my father and I about the what kind of doctor he was. He asked dad if he knew what a “onocologist/Hemotologist” did and dad said, “Yes, they treat cancer”. The doctor tried to explain that at dads advanced age (87) and health, it would be more dangerous to do a biopsy where they had to make an incision than to just see what they came up with in the needle biopsies. They told us that he was the oldest patient they had ever treated with all these problems AND STILL FIGHTING.

I guess that is good, but the continual passing from doctor to doctor, and after this hospital stay from nursing home to the hospital again for pneumonia was very hard on all of us. I have not been in good health since the sudden death of my son, so the constant “visiting was very hard on me.”When dad started out on every IV antibiotic hey could think of to fight the pneumonia, my daughter and I were literally courted by Solace, even given a tour because they thought he would not recover. Solace was in a nice, new facility, but they don’t give even the very amount of therapy the “nursing homes “ do. It is not in their protocol. I hate to be mean, and don’t intend to be insulting to Solace/Hospice, who have been very good to us, but when dad didn’t die right away, they began shuffling to another nursing home for so-called therapy.

This made 5 transfers within five weeks and it was talking its toll on dad and our family. We had other serious issues to deal with as well. The nursing home conditions were not what we were told they would be. He was in a double room with one chair (which was moved for some reason) and a room-mate who mumbled all the time and kept the window open which upset my dad a great deal. My father was miserable and the “nursing home smell was awful.

With my heart overriding my head, I decided to bring my dad to my home and care for him. By this time he had contracted another serious bladder infection which required shots twice a day because dad’s lymphatic leukemia makes him unable to fight off infections. My daughter an I had to really fight to get him released to my home, with a hospice nurse giving thee morning shot, and my daughter, an RN giving the evening shot. It didn’t take long for me to realize that doing the right thing, certainly didn’t mean doing the simple thing.

By the time the shots were over, I was so exhausted that I often simply collapsed on the bed after picking up my teen son from his I.T. Internship with the school system. My daughters were good to help with food, and of course the RN daughter helped with shots, but the burden was mainly on me. My husband helped, but was often not at home. I am sure Hospice is tired of our calls, but we were often confused and left with conflicting directions from the nursing home’s medications, Hospices recommendations and trying to get my father to doctor appointments that he simply was not able to go to. By day 6, I was a wreck. A family meeting was called to see what more could be done to help me as the problems with my father being uncooperative and his short-term memory minimal.

This is where I am right now. If you have read this much of my blog, you are probably feeling a bit of the exhaustion that I feel. We still have no answers. The biopsies that might have told us a little more could not be done. Dad could come down with a serious infection tomorrow, or go for weeks, we don’t know.

My point in writing this long diatribe is two-fold. Number one, you are not superman (or woman)even when the conditions at nursing homes are not up to your standards, home care planning should be made with more care BEFORE the parent comes home.

Number two-make sure that the people who say they will help have a schedule of WHEN they will help and that they are committed to do it. In my cause the girls all work and/or have children under two. One daughter-in-law now had a sick newborn at home to care for-along with two older, active boys. The best of intentions may be hard to fulfill.

In closing, I commend all of the baby boomers like me, who are caring for parents, children and grandchildren. We deserve some kind of heroism medal, but that wouldn’t help either. Plan carefully and don’t let guilt rule your decisions, you are only human. As for me, I will just do the best I can and hope my help comes through.

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